The Boy Whose Skin Fell Off
Overview
A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.
Top-billed cast
- JJonny Kennedy
Crew
- Director
- Patrick Collerton
- Producers
- Patrick Collerton, Eric Harwood
- Production
- Channel 4 Television, Yipp Films Ltd
Frequently asked questions
What is The Boy Whose Skin Fell Off rated?
The Boy Whose Skin Fell Off has an audience rating of 7.5 out of 10 from 8 votes.
Who directed The Boy Whose Skin Fell Off?
The Boy Whose Skin Fell Off was directed by Patrick Collerton.
When was The Boy Whose Skin Fell Off released?
The Boy Whose Skin Fell Off was released in 2004.
